Some Tips on Dealing With Severe Bowel Illnesses?
Question by Chris. ?: some tips on dealing with severe bowel illnesses?
Bottom line is, I suffer from a Bowel illness. The doctors are very tentatively giving it the title of “Severe IBS”. It started 5 years ago, diagnosed with IBS, was never really a major issue besides the fact I had to watch what I ate. Fine. Over the years it’s gotten progressively worse. I’ve played doctors favourite guinea pig for two years now with no signs of slowing down. Good news is my latest Endoscopy’s (one down the throat, one through the bowels) show no signs of Crohn’s disease or colitis. Which is a bitter sweet pill to swallow because I’m happy It’s not either of those two, but would have been satisfied if we could just put a name to it.
Regardless, I’ve tried SO MANY Different diets by doctor has told me to stop for the time being, eat normal food, live normal for a while until he can see me again. Fair enough.. basically my daily routine is I wake up at about 1 PM feeling like someone beat the crap out of me while I slept, I don’t eat breakfast, Don’t eat lunch, I eat a bit of dinner, I take a tablespoon of soluable fibre twice a day, I drink a protein shake every day because My weight tends to drop during my worst times. Then I go to bed. My schedule is completely out of wack, I never know when I’ll be awake or when I’ll be sleeping. It’s bad in the mornings, it’s best late afternoon/evening and it’s bad again during the night. It’s not specific things, it’s just food in general, which is why I don’t eat a lot to begin with.
To top it all off.. I’m 16, Lost a whole semester of school to it last year, had to be homeschooled just to achieve 50’s (i’m usually an 80+ Average). I went back to school this year but again, haven’t been to school in three weeks for the simple fact that I go to school, but end up having to come home sometimes before first period is even over. It’s pathetic. I can’t even go to school. Not to mention I also had to give up my job for it.
and the best my specialist has done in recent months is sent me to a god damned shrink to “manage stress”. And all THAT Did, was stress me out. I manage stress fine, I don’t know how he managed to find a stress shrink as a solution to a bowel disorder but i did what i had to do, and guess what, big suprise here, it didn’t do anything for me.
What else can I do to keep myself up? My spirits at least..
Remember, I’m 5 years into this, unless you have a really experienced suggestion, chances are I’ve tried it, but I appreciate all tips.
People look at me and go “Don’t let it consume you, you should go to school and live a normal life” I’m dead serious when I say it’s physically impossible to attend class in the condition i’m in. I’m not letting it consume me, I really don’t have a say in what it does.
How the hell do I control it, or what can I do to help my body feel normal.
I live my life feeling like crap all the time. The physical exhaustion starts to get to you, so does the depression and many other feelings.
This isn’t just a one dimensional illness, anyone who has suffered from anything remotely close to what I am, knows what I’m talking about.
Anyways, any input is appreciated, thank you.
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