Alcohol Abuse Advice

Question by jesskarules: Non-Classical Adrenal Hyperplasia ever heard of it?
Okay, I was completely astonished by this.. I was watching this show called “Mystery Diagnosis” on Discovery Health. I could not believe what I was hearing – this woman and her family on the show were explaining her ordeal throughout the last 10 years

I knew from the first symptom she had expressed what she had. Wow, was I ever wrong. The more and more I watched, the more I was convinced she had Polycystic Ovarian Disease.

To make a long story short, this woman had almost every single symptom of Polycystic but it turns out that she had a disease called Non-Classical Adrenal Hyperplasia.

Apparently, the symptoms almost mimic one another.. I could not believe it. I just thought I would share this with all of you as I had never heard of it and I don’t know if any of you have either, have you?

I had been diagnosed with PCOS at 20 and im now 23, and i was never told of this, i was not tested for insulin levels & where the testosterone was coming from (with non-classical adrenal hyperplasia the testosterone comes from the adrenal glands and not the ovaries)

I’m now pregnant, so im thinking after the baby is born to get tested for this NCAH, and see what they find, im so glad i found this as i may have been misdiagnosed with PCOS as it said on the show many people get diagnosed with the common PCOS and not this… so its possible some with PCOS have it and have not been notified

I recommend if you have been diagnosed with PCOS & never heard of or this NCAH has not been ruled out, to go and get checked and tested for this, tell your doctor about this & ask for tests

Heres a site that gave me the overview of the symptoms after looking it up:

http://www.wrongdiagnosis.com/c/congenital_adrenal_hyperplasia_non_classical_form/symptoms.htm#symptom_list

Its the same symptoms i have for the so called PCOS

Also apparently if you have NCAH your more at risk for getting PCOS which causes the ovarian cysts symptoms…
Also with NCAH you dont take birth control pills to correct the problem, you are given some steroid (forgot the name) and it makes the testosterone and other symptoms drop and brings your period back… the birth control only gives you a regular non ovulation period… so please get tested if you think you may have this!!

Best answer:

Answer by sokokl
I have heard of this diagnosis. I learned about the diagnosis thru Mystery Diagnosis as well and it caused me to start wondering as well.

I am hoping to get to Endocrinology again to get this checked in to when I talk to them about whether or not I have a thyroid problem.

Know better? Leave your own answer in the comments!