Can You Tell Me About Your Personal Experiences With Celiac Disease?
Question by lisaaanoel: Can you tell me about your personal experiences with Celiac Disease?
I have read a lot of formal information on the internet, so I’m not looking for the “token celiac symptoms.” Instead, I was wondering for those of you who have been diagnosed, if you could tell me your personal experiences with it. I’m interested to know:
-What were your symptoms? Particularly your abdominal pain/discomfort. Where did you typically feel it? Was it constant?What type of pain was it? Did you experience a tightness in your abdomen or a pressure-like pain? Or was it more of a cramping pain?
-How about digestive issues?
-How often did you experience your symptoms?
-What was your diagnosis process like?
-Finally, how long after starting a gluten free diet did your stomach feel better?
Best answer:
Answer by Sue
My symptoms were ANYTHING but ordinary:
In 2003, after 6 months of constant nausea and unable to keep anything down, I was diagnosed with gall bladder disease (gall stones) and had my gall bladder removed. Internal doctors said my digestive issues that followed the surgery were due to no bile without a gall bladder. Continued throwing up every fews days or so without any meds that could ease the nausea
In 2005, I was tired sleeping 16 hours a day and later that summer developed 5 blood clots (21 years old at this point). Diagnosed with an autoimmune blood disease.
In 2006 diagnosed with Sjogren’s Syndrome and Lupus (autoimmune disorders) due to lab results – lethargic, liver not functioning properly. Still experiencing digestive issues and nausea
In 2007, my mother suggested I try going gluten free. Within 3 weeks, I was no longer throwing up, I lost tons of weight, no longer tired.
When I returned to the doctors, they confirm my thoughts of celiac disease. Also, attributed my gall stones and all the issues I had had through the years to the fact that I had Celiac Disease.
I have had positive blood results for over a year and a half, with no real symptoms of ANY of my other autoimmune disorders.
Feel free to message me with any questions. I tried to keep the epic journey short, but it was a battle. The positive results of something so simple as giving up food in my diet outweighs the suffering a million to one
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